Got questions about the study? Check out the FAQ’s below. If you can’t find what you are looking for, contact us. We’re happy to answer any questions you may have.
We are keen to hear from you every few years to keep up-to-date with how your lives are changing. Now aged 46/47, many of you have children, have changed jobs and are experiencing new things. We’d love to hear about your lives right now.
Taking part in the study is a chance to represent your generation, and to inform the support and services available in future. The study will inform and improve policy in areas such as health, work and housing. Most people usually enjoy taking part and find it’s a useful opportunity to reflect on life.
The study is managed by the Centre for Longitudinal Studies at the UCL Institute of Education, a faculty of UCL university in London. The visits are being conducted by a company called NatCen Social Research, who we have worked with on several previous surveys.
The 2016-2018 Survey is funded by:
No, they will not know who said what. The names and addresses of respondents interviewed in this survey are known only to the small team of researchers at NatCen Social Research and the Centre for Longitudinal Studies who are involved in this study. Names and addresses will be kept separate from the questionnaire answers and the results of the health measures, and will never be revealed without your permission. This means that replies can never be personally identified.
We would like you to take part in the following:
The interview will take around 50 minutes.
The health measures will then take a further 50 minutes.
Taking part is voluntary, but most members of the study find it an enjoyable and interesting way to reflect on life. You can skip any questions that you would rather not answer. Likewise, you can agree to the health measurements that you want to take part in, and decide not to do others.
Yes. Agreeing to the health measures is your choice. You can decide to consent to some, all, or none of them – this will not affect your participation in the study as a whole. We really hope you do agree to the health measures as this will make the information we collect even more useful.
All interviewers and nurses who work for NatCen Social Research carry an identity card. They will also have a copy of the letter that was sent to you in advance. You can verify the identity of your interviewer or nurse by calling NatCen Social Research on Freephone 0800 526 397.
If you need to rearrange your appointment, please call the interviewer/nurse directly if you have their telephone number. If you don’t, you can call or email NatCen Social Research on Freephone 0800 526 397 or firstname.lastname@example.org.
The activity monitor should be worn for seven days, starting from the day after your visit. The day you should take it off is indicated on your sleep diary. You will be sent a reminder by text and email on the day you should take it off (if we have a mobile number or email address for you). If you are unsure, please call or email NatCen Social Research on Freephone 0800 526 397 or email@example.com.
If you need another envelope to post the activity monitor back in, please contact us on 0800 526 397 or firstname.lastname@example.org and we can send you one.
We would like you to complete the questionnaire on two separate days, which your nurse should have written on the front of your diet questionnaire leaflet. If they didn’t do that, or you can’t find them, please contact us on Freephone 0800 526 397 or email@example.com and we can tell you which days.
We would like to carry out the following health measurements:
Unfortunately, we are unable to offer you anything for agreeing to the health measurements. As always, everyone on the study team, and those who use the data, are extremely grateful for the time you have given to the study over the years. Without you we just couldn’t do it.
Adding health measurements to the information we already have in BCS70 gives us a unique opportunity to really understand your lives in depth. They will allow us to answer many more questions about the health of people in your age group including questions about some of the most significant health issues affecting society today. For example, by asking you about your working hours and testing your blood pressure, we can see if the two are related. Many people find taking part in studies with health measurements a useful moment to reflect on their health and lifestyles.
Your nurse can give you a record of your measurements for waist and hip circumference, blood pressure, grip strength, height, weight, and body fat percentage at the end of your nurse visit, if you would like them. We can also send you the results of your blood tests and a summary of your physical activity as measured by the activity monitor.
Collecting blood samples will help us to carry out important medical research. For example, we are interested in understanding things like how diet may influence cholesterol, and how different lifestyles can affect the chances of heart disease.
With your permission we would like to extract and store DNA from your blood to use in future research. Previous research shows that an increasing number of illnesses have a genetic element, including cancer, diabetes, asthma and certain heart conditions.
Research using DNA from the blood samples given by members of the 1958 birth cohort study has led to important breakthroughs in our understanding of the role of genetics in common medical conditions such as diabetes, rheumatoid arthritis and coronary heart disease. Looking at the genes from a large number of people, combined with all of the other information we have collected about your health and your lifestyle, will help researchers to identify which genes are linked to certain conditions. This will help with understanding who is most at risk, which may in turn lead to improved diagnosis, treatment and disease prevention.
With your permission, we can send you the results from your blood tests. These results will be: total and HDL cholesterol and glycated haemoglobin tests. If you wish, we can also send these results to your GP, along with your blood pressure results. We will need your consent to do this.
If you consent to us extracting DNA from your blood sample, we will not be able to provide routine feedback of the results of genetic testing. Tests done on your DNA are not the same as clinical genetic tests and cannot be used for diagnosis. If, however, throughout the course of the research we find something that we think could indicate a preventable medical issue, we would attempt to contact you and advise you to consult with a medical professional.
If you agree to your blood pressure or blood sample results being sent to your GP, then she/he may use them in medical reports about you. For example, if you apply for a new life assurance policy, or for a new job. When people apply for new policies, insurance companies may ask if they can obtain a medical report from the GP. An insurance company cannot ask your GP for a medical report about you without your permission. Having given your permission, you then have the right to see the report before your GP sends it to the insurance company, and you can ask for the report to be amended if you consider it to be incorrect or misleading.
Your DNA samples cannot be used by lawyers or insurance companies, and will be used for research purposes only.
No, unfortunately this is not possible. We use a research laboratory to process the samples, not a medical laboratory. Your DNA will only be used for research purposes.
BCS70 will not use your DNA for cloning humans. The use of human tissue and DNA is strictly controlled. The organisations that fund this research, the UCL Institute of Education, and the Access Committee, do not allow human cloning.
You can withdraw your consent for the use of your samples at any time, without giving any reasons, by writing to us at 1970 British Cohort Study, UCL Institute of Education 20 Bedford Way London, WC1H 0AL. We will then inform the laboratory and the stocks of your samples will be destroyed.
As well as testing your blood sample for cholesterol and glycated haemoglobin, we are now carrying out seven additional tests:
The additional tests have been chosen because they are important for predicting future health outcomes. They are also measured in a number of other studies, which means researchers will be able to make comparisons across different birth cohorts, to see how things change or stay the same across generations.
We are not able to provide you with feedback of results for any of these additional tests.
Life for your generation is different to the lives of your parents and grandparents, and to the lives of younger generations. So we are following your lives to understand and learn from your special generation.
The 1970s, when you were born, was a decade of economic instability and growing inequality. While unemployment was low in the early 1970s, the decade saw growing industrial and social unrest. Strike action culminated in the ‘winter of discontent’ in 1978-79, and the Troubles began to unfold in Northern Ireland.
More than a third of you lived in council housing at the age of 5. In 1979, Margaret Thatcher became Britain’s first female Prime Minister. A global economic recession overshadowed much of the 1980s. Several public industries were privatised, and much of the state’s social housing stock was sold off under the ‘right to buy’. Today, home ownership remains lower among your generation than for those born in 1946 and 1958.
There were significant reforms to education when you were young. The vast majority of you attended comprehensive schools, following the slow decline in grammar schools and secondary moderns throughout the 1970s. By age 42, a quarter of you had a university degree. While this may seem low by contemporary standards, it is significantly higher than amongst those born in 1946 and 1958. Less than one in five of those born in 1958 and fewer than one in ten born in 1946 obtained a degree. The greatest advances were made by women – 25 per cent of women born in 1970 have university degrees, compared to just 6 per cent of women born in 1946.
But while educational opportunities improved for your generation, general health has worsened. Convenience foods became more common in the 1980s, as did car ownership. People became less and less physically active. By the age of 16, those born in 1970 were significantly more overweight than generations before them. You also drank more during your teenage years, but were less likely to smoke.
These are just of the few of the differences between your generation and the lives of older and younger generations. We want to know how your experiences have impacted on your life so far and how they will affect the rest of your life.
By taking part in BCS70, you are acting as the voice of your generation. You are one of around 17,000 people who have taken part over the years. Each and every one of you brings something unique to the study, and together, you represent the diversity of the BCS70 generation. That’s why it’s so important that people from all different sorts of backgrounds continue to take part in the study. Without you, we don’t hear the whole story and the picture is not complete.
To learn more about why the study was started, visit the ‘History of the study’ page.
In the late 1960s, there was a lot of concern about the number of babies born with abnormalities, or dying very early in life. Doctors and others wished to examine the factors associated with good health in mothers and babies. It was decided that the best way to do this would be to study all the babies born in Britain in one week – and that just happened to be the week in 1970 when you were born! The midwives who delivered the 17,000 of you born in England, Wales and Scotland in that week asked your mothers if they would be willing to take part in the study which was then known as the British Births Survey.
Five years later it was decided that it would be worthwhile to try and find as many of your families again, to see what had happened to you – how healthy you were, how you were getting on at school and so on. Since then, as you know, the study has gone on to follow you throughout the rest of your childhood and on in to adulthood.
*Those born in Northern Ireland were not followed up in subsequent surveys.
By taking part in BCS70, you’re helping to shape society and to make life better for your generation and the next. Politicians, teachers, doctors, nurses, social workers and others use findings from the study to improve services and policies to help people like you. You can find out more about how the study has made a difference on the ‘What have we learned’ pages.
BCS70 is trying to capture the story of your life, and only you can tell it. We have been following you since you were born and we really want to continue following the rest of your lives as well.
You’re unique and irreplaceable. If you choose not to take part, we cannot replace you with anyone else. Without you, we don’t have the whole story.
It’s important that we understand what life is like for people from all different parts of the country, different family backgrounds and different ethnicities. That’s why we need as many of you as possible to keep taking part – each and every one of you brings something new to the picture and together, you represent the diversity of the BCS70 generation.
More than 17,000 people have taken part in BCS70 since it started.
As you were growing up, your parents or guardians will also have taken part in the study as well. During your time at school information was also collected from your teachers. In 2004, when you were 34, we asked your children (if you had any at this time) to complete a questionnaire and a number of assessments. You can learn more about who we’ve spoken to on the ‘Survey’ pages.
In 2012, when you were 42, we asked your partners (and you) to give us permission to add information from health records held by the NHS and economic records held by the Department of Work and Pensions (DWP) and Her Majesty’s Revenue and Customs (HMRC) to the information you have given us in our surveys over the years. Find out more about adding information to your survey answers.
At each survey, we’ll ask you about things that are relevant to your lives. When you were younger, we asked you about school, friends, family life and your hopes for the future. Now you are older, we’ll ask you about things like work, health, whether you get married or have children, and about your attitudes and beliefs. We’ll write to you before each survey to tell you all about what is involved.
If you move or if your contact details change, please let us know as soon as you can. This means we can make sure you get information about BCS70 and that we can contact you to invite you to take part in each survey.
We’re interested in following your life story. We want to see how your life changes over time, and what your life is like at certain ages. In the past there were some long gaps between surveys, but the funding of BCS70 is now more secure and since you were 26 we have carried out surveys every four years. The 2016-17 survey is currently underway and the next survey is planned for 2020 when you will reach the age of 50. After that, we plan to carry out surveys every five years.
The more information that the study gathers about your life over time, the more valuable it becomes. This is why we so value your unique and continued contribution.
It is up to you to decide whether or not to take part in each survey. We will send you information before each survey to let you know what it will involve. If you move between surveys, it would be very helpful if you could contact us with your new address.
We’re interested in following your life story. We want to see how your life changes over time, and what your life is like at certain ages. We choose key points in your life to visit you, which are interesting and important for particular reasons.
BCS70 is like a photo album not only of your life, but of all the other study members too. That’s what makes it so interesting, and this is why you are so important, as you cannot be replaced.
The more information that the study gathers about your life over time, the more valuable it becomes. This is why we so value your unique and continued contribution.
We hope that the study will continue throughout your life. Other similar studies, which started in 1946 and 1958, are still continuing today. After the current survey, which is due to end in early 2018, the next survey is likely to take place in 2020 when you reach the age of 50.
We really hope that you continue to take part. However, the study is voluntary so if you no longer want to take part in the next survey or in any future surveys, please contact us to let us know.
If you are not sure whether you’d like to continue to take part or if you have any questions about taking part, please do not hesitate to contact us. We really value the contribution you make to the study and are always happy to talk to you and answer any questions you may have.
Without you BCS70 is not possible. If you decide not to take part, we can’t replace you with anyone else. Your unique contribution is incredibly valuable.
To find out more about how your involvement helps make a difference to society visit the ‘What we’ve learned’ pages.
Yes! We’d like everyone to take part each time we visit. But it’s up to you to decide whether or not to take part each time. If you miss a survey, you can still remain in the study and do the next survey.
Even if you haven’t taken part for a while, we would love you to take part again. There’s a lot we can learn from how your lives have changed since you last took part even if we don’t have all the details of your life in between.
Each survey is important because we focus on different aspects of your lives each time we get in touch. The more information that the study gathers about your life over time, the more valuable it becomes. This is why we so value your unique and continued contribution.
If you are not sure about whether to take part or if you have any questions about taking part, please do not hesitate to contact us. We really value your contribution and are always happy to talk to you and answer any questions you have.
If you move or if your contact details change, please let us know as soon as you can. This means we can make sure you get information about the study and that we can contact you to invite you to take part in each survey.
During each survey, we will ask you for information about lots of different aspects of your life. We’ll write to you before each survey to tell you all about what is involved.
It’s fine to tell family and friends that you are part of the study. We do advise you not to make this detail public though, for example on social media, as this could risk compromising your anonymity.
We send birthday cards to study members every year and with this we will updates about BCS70 to make sure you know what is coming up, what we’ve learned, and how the study has made a difference. We will send additional information from time to time. You can download some of the materials we’ve sent you in the past from the ‘Resources’ page.
Before each survey, we’ll write to you to tell you everything you need to know about what is involved. You might want to know when the survey is taking place, or how long it will take. We’ll always try to answer any questions you have. After each survey, we’ll also write to thank you for taking part.
Between surveys, we will send you results from the study telling you what we have found out. It can take a while to put together all of the information you give us, so it is usually a few years after each survey before we can send you the results.
We also keep the study website up to date with news and findings from the study.
We will write to you regularly with news from the study, telling you what we’ve found out about your generation. It can take a while to put together all of the information you give us, so it is usually a few years after each survey before we can send you the findings.
The information from the study is being used all the time by researchers around the world, so new findings are always emerging. To find out more about the study so far, visit the ‘What have we learned?’ page.
You’re such a valuable part of the study and we really value your input. We want to make sure that we have the right contact details so that we can keep you up to date with the study and contact you to invite you to take part in each survey.
Updating your contact details is simple to do. All you have do is either call us via the Freephone telephone number (0800 0355 761), or email us at firstname.lastname@example.org. Your call and/or email will be treated in the strictest confidence. You can also update your details by completing this online form. From time to time, we may also send you a change of details form or card to help you to do this.
You simply fill out the form that we sent you with any new information such as address changes, new phone and email addresses, or changes to a contact person’s details, and return it to us in the prepaid envelope. Where there are no changes to your details we would like you to send us back the form anyway to indicate that we have the correct information on your record. If you prefer you can update us with your new details by Freephone (0800 0355 761), or by email (email@example.com) and dispose of the form.
If you cannot find your form, please confirm your contact details by Freephone (0800 0355 761) or by email (firstname.lastname@example.org). Your call and/or email will be treated in the strictest confidence.
We need to keep in touch with as many of you as possible to make sure BCS70 continues to represent the diversity of your generation. If we find out that you’ve moved, we will try to find your new address.
We first try to contact you through the direct links you have given us, such as phone numbers, email addresses and your postal address.
If that doesn’t work, then we will try to contact any family members or friends whose details you have given us. If we still haven’t found you, we will check the electoral register and the telephone book, both of which are public records and available electronically. We may also try to find you using internet searches, by looking on social media sites and by using information held by government department and agencies.
All of this tracing is usually done before the next survey starts so that we can provide interviewers with your current email address, telephone number or home address. However, if we have not been able to locate you, or if the interviewer finds out you have moved, then they will also try to find out where you’ve moved to. As well as trying to make contact by phone and in person, the interviewer may also call at your old address to speak to the new residents and call on neighbours. When we are looking for you, we won’t reveal to other people, apart from your family and friends, that you are part of BCS70.
From time to time we try to trace study members using information held by government departments and agencies. So far, BCS70 has tried to trace study members using records held by the Department for Work and Pensions (DWP) and the NHS (via the NHS Central Register). We may use other government databases in the future.
The NHS Central Register is a database of GP registrations and is held by the Health and Social Care Information Centre. We would also find out if you died or moved out of the country from this register.
Whenever we do this, we securely transfer the personal details (name, sex, date of birth and last known address) of study members to the government department or agency. They use these details to identify our study members and then send us their up-to-date addresses. They do not retain the personal details sent to them.
This kind of personal information is not given out routinely by government departments and agencies. Special permissions are needed, and this is only done after a careful review of why this information is needed, ethical issues and data security procedures. For the information coming from the NHS, special approval under Section 251 of the NHS Act 2006 from the NHS Confidentiality Advisory Group and NHS Digital Data Access Advisory Group is needed.
Sometimes we try to find study members using the internet and social media. This may involve carrying out internet searches, for example using Google, and searching on Facebook and other social media sites. We also know that it can be difficult to identify people accurately on the internet and social media. So, whenever we are searching in this way, we will not reveal the name of the study in case the person we contact isn’t one of our study members.
It would be very helpful (as well as saving us time!) if you could contact us to let us know where you have moved to. This is simple to do. All you have do is either call us via the Freephone telephone number (0800 0355 761) or email us at email@example.com. If you have recently taken part in a survey you can also return the Change of Address card which was left by your interviewer. Your call and/or email will be treated in the strictest confidence.
If you move abroad please let us know your new contact details, including your address, telephone number and email address so that we can keep in touch and send you letters and updates.
You can contact us with these details by Freephone (0800 0355 761), or by email (firstname.lastname@example.org). Your call and/or email will be treated in the strictest confidence.
It is not usually possible for study members living abroad to take part in the surveys. However, you can re-join the study and be included in the next round of interviews if and when you return to Great Britain.
In the future, it may be possible for study members living abroad to conduct the survey remotely through web or telephone interviews.
We hold your personal details (your name, full address, telephone numbers, email addresses, etc.) in a secure and restricted administrative database, to which only a small number of authorised staff have access. We use your personal details so that we can keep in touch with you, for instance to send you information on how the data you provide to us in the survey is being used by researchers, and so that we can contact you during each survey. We never make these personal details available to researchers or to any third parties who might use them for marketing purposes.
We share your personal data with those external organisations we have contracted to either carry out our surveys, or send you mailings between each survey. NatCen Social Research is the independent research organisation that has been contracted to carry out the Age 46 Survey, on behalf of the Centre for Longitudinal Studies at University College London. Copyprint UK carry out the mailings between each survey. These external organisations are contractually bound to UCL to keep your data safe and secure, and are accredited to data security standards.
We go to great lengths to maintain your privacy. We respect that you have voluntarily given information to us on the basis that we protect your rights. We keep any information which could identify you in a secure location.
At the Centre for Longitudinal Studies, the study data is managed by two different teams, all of whom have signed strict confidentiality contracts and can only access this information for limited purposes. One team deals with your personal contact information to make sure we are able to stay in touch with you. The other manages all the other information you provide in the survey. Neither team has access to both.
The organisations which carry out the surveys are also contractually bound by very strict confidentiality and data security agreements.
The collected survey responses are made available to the research community at the UK Data Service. These research data do not contain any personal details that are identifiable at individual level and are only made available to researchers who register with the Data Service, who must work under a strict licence agreement. No-one using the data will know who the information has come from, or who is in the study.
The purpose of the 1970 British Cohort study is to understand the whole picture – of your lives individually, and of your generation as a whole. The aim is to follow your whole life’s journey. For this reason, we have not set a time limit for how long we will keep your data. This applies to both data collected in the surveys and any data linked in to your survey data. It is very important for us to keep your data safe.
Under data protection legislation you can get a copy of the information you gave to the surveys. Everyone has the right to access any personal data that is being kept about them. You can do this by making what is known as a subject access request. You should send your request to email@example.com
Additionally, you can download the study data from UK Data Service by registering and signing the special confidentiality contract. However, unless you are a professional researcher the data may be difficult to understand as they are in a complex format. And you won’t be able to identify yourself as the data are de-identified.
Your contact details are not transferred outside the European Economic Area (EEA), to ensure that they are protected by the strong EEA data protection laws.
You are under no statutory or contractual obligation to provide us with your personal data. You have the right to withdraw from the study at any time. If you do this, we won’t contact you anymore, but we will keep your contact details as a historic record that you were once a member of the study.
There are lots of researchers who analyse the data from BCS70 every year. Anyone using the data needs to sign a special confidentiality contract that states that they will only use it for research.
The General Data Protection Regulation – https://www.eugdpr.org/, sets out our duties and responsibilities when we process and use your personal data. GDPR was approved by the European Parliament on 14th April 2016 and came into force on 25th May 2018. Because the GDPR is a regulation, it is directly binding and applicable. The new Data Protection Bill (2018) brings the GDPR into British law, and is part of the Data Protection Act 2018.
The 1970 British Cohort Study collects personal data from you, so it needs to be compliant with GDPR, which sets out the duties and responsibilities we have to you, and your rights regarding the personal data that we hold and process.
The study is managed by the Centre for Longitudinal Studies (CLS), which resides at University College London (UCL). UCL is the ‘Data Controller’ for this study. We contract with different external organisations who carry out our surveys on our behalf. These organisations act as ‘Data Processors’. For the current Age 46 Survey, the fieldwork is contracted to NatCen Social Research. The postal mailings we send to you between each survey are contracted to Copyprint UK, who also act as a data processor.
The study is funded mainly by the Economic and Social Research Council (ESRC). The aim of the study is to generate data for research purposes and its funders and UCL are Public Authorities/ Bodies – this is regarded as a ‘Task in the Public Interest’ under GDPR – and is the lawful basis on which we are permitted to process your personal data.
In addition, we comply with all the relevant legislation on protection of confidentiality. We have received externally certified accreditation to the NHS Digital Information Governance Toolkit standard, which allows us to hold data from the NHS, and which also provides you with assurance that your data is secured and protected in the strongest possible manner.
The 1970 British Cohort Study is funded by the Economic and Social Research Council (ESRC). The aim of the study is to generate data for research purposes and its funders and UCL are Public Authorities/Bodies – this is regarded as a ‘Task in the Public Interest’ under GDPR – and is the lawful basis on which we are permitted to process your personal data.
University College London is the Data Controller and is committed to protecting the rights of individuals in line with the Data Protection Act 1998 (DPA) and the new General Data Protection Regulation (GDPR).
If you want to request further information about our privacy notice you nay contact the University College London Data Protection Officer through firstname.lastname@example.org
If you wish to raise a complaint or a cause for concern in relation to the study, or about how your data is processed you can get in contact with us in a range of ways:
Call: 0800 0355 761
Post: FREEPOST RTCX-HBGC-CJSK, 1970 British Cohort Study, UCL Institute of Education, 20 Bedford Way, London, WC1H 0AL
Government departments and agencies hold information about people which they use for routine administrative purposes. From time to time, we add information from these routine administrative records to the information you have given us as part of the study. We only do this if we have permission from you.
As part of the Age 42 Survey in 2012, we asked you for your permission to add information from health records held by the NHS and economic records held by the Department of Work and Pensions (DWP) and Her Majesty’s Revenue and Customs (HMRC) to the information you have given us in our surveys over the years. If you lived with a partner at this time we also asked them for permission to add information from their records.
We also add information that is not about you individually, but is about, for example, the school you went to or the area you live in. At no point will your personal details, such as your name or address, be included in the data made available to researchers. This means it is not possible to identify who is in the study.
Watch our video to find out more about adding other information.
National Health Service (NHS) records
The NHS maintains information on all patients accessing health services through routine medical and other health-related records. These records are held within statistical health databases which record information about:
Why is this information useful?
We collect information about your health in the interview but this information is fairly limited in scope. The information recorded in your medical records is objective and based on confirmed diagnoses by medical professionals. However, medical records may not be entirely complete as they will not include details about problems which have not been reported to a doctor.
Combining information from the interview with information from your health records would give us a more complete picture of your health.
This information will allow researchers to answer questions such as:
Department for Work and Pensions (DWP) records
The DWP keeps records of everybody’s benefit claims and any periods people spend on employment programmes.
Her Majesty’s Revenue and Customs (HMRC) records
HMRC keep records of everybody’s employment, earnings, tax credits and occupational pensions (since 1998) and National Insurance Contributions since the early 1970s.
Why is this information useful?
For many years we have been collecting information on your economic circumstances. The information you have provided has allowed researchers to examine a whole range of issues like the financial benefits of education and training, the importance of early childhood circumstances on adult income and social mobility which is the extent to which people’s social class or economic status changes between childhood and adulthood.
Over the years, collecting information about sources of income has become increasingly complex, particularly since the widespread introduction of in work benefits and tax credits and changes in eligibility to different benefits and welfare to work programs.
It is very difficult to collect sufficiently detailed information about tax credits and benefits, but these are increasingly a very important source of income for a lot of families – particularly since the economic downturn.
We are therefore asking for your permission to gain access to the economic administrative data held about you by HMRC and DWP. This includes information about any tax credits that you receive, your National Insurance contributions (critical to working out pension entitlement), your earnings (which are used to work out entitlement to things like Child Benefit, Student grants and loans for your children and child tax credits), benefits that you receive as well as information about participation in DWP programmes, such as the New Deal.
This would allow researchers to look at important questions that have previously not been tackled in these troubled economic times including:
The circumstances of those around you have a big effect on you. If, for example, your partner were to become seriously ill, or were to experience a prolonged period of unemployment, this could clearly have a hugely significant impact on your life. We are only able to collect a very limited amount of information about your partner when we interview you, so adding their records will give us a much better understanding of your family circumstances.
You do not have to give your permission. If you do not give your permission, you can still continue taking part in the study.
You can withdraw permission at any time for your NHS, DWP or HMRC records to be added to your study answers.
This can be done by writing to FREEPOST RTCX-HBGC-CJSK, 1970 British Cohort Study, UCL Institute of Education, 20 Bedford Way London, WC1H 0AL.
At age 42 survey, we asked you if we could add to the survey data, some information held by the National Health Service (NHS) about your health such as visits to the doctor, nurse or midwife, hospital attendance or admission and the dates of these visits, health diagnoses or conditions, medicines, surgical procedures or other treatments you have received.
We are now starting to get some information about your health, which means researchers will be able to look in greater detail at what affects your health – what factors prevent or contribute to poor health, and how policy makers might improve things for you and other generations – how health conditions can be treated or managed more effectively.
In our information leaflet about data linkage, entitled ‘Age 42 Survey – What Other Information we Like to Collect’ we said we would like to get information from ‘routine medical and other health related records’. This means that we need to send securely personal data to the where your health records are kept to match them to you.
With your permission, we send your unique survey ID, name, sex, address, date of birth to NHS Digital (formerly the Health and Social Care Information Centre – HSCIC). Where available, we will also send your NHS number. These details are provided to help identify your records accurately. We will not send your survey responses or other information about you.
For those of you in England, NHS Digital hold all hospital admissions and outcomes data from the Hospital Episode Statistics (HES) dataset and will link this information to individual participants in the study, who have consented to this data sharing. For those of you in Scotland and Wales your medical records are held by NHS Scotland and NHS Wales, respectively.
When your health records have been identified the file containing your personal details is destroyed. Just your unique survey ID and the information extracted from your administrative records are sent back to the BCS70 team. Your unique survey ID is a string of letters and numbers created just for you which can be used instead of your name or date of birth to identify your study data without identifying you. The BCS70 team then match the information from your health records to your survey responses using your unique survey ID. At no point will your name or address be included with the matched data.
To keep your data safe, the information we exchange with NHS Digital is encrypted and sent via secure transfer systems, in line with the most up to date security protocols and procedures.
The BCS70 team will add information from your health records for the duration of the study or until you tell us to stop.
Any permission you give will remain valid for the duration of the study and we will collect these records on an ongoing basis unless you tell us to stop. You can withdraw your permission to add information from NHS records at any time, without having to give a reason. This will not affect the medical care you receive. This can be done by writing to: Freepost RTCX-HBGC-CJSK, 1970 British Cohort Study, Centre for Longitudinal Studies, UCL Institute of Education, 20 Bedford Way London WC1H 0AL.
The linked health and survey data will be made available to researchers and policy makers via the UK Data Service for research purposes only. Researchers will only be given permission to use the data after successful application to ensure that the information will be used responsibly and safely, presents a strong scientific case and explains the potential impact of the research and its wider value to society.
Your name, addresses, National Insurance number and NHS number are never included in any data made available to researchers via the UK Data Service, which ensures that no individual can be identified from the data or the research findings. All information collected by and added to BCS70 is treated with the strictest confidence in accordance with the Data Protection Act 1998.
Social research is research conducted by social scientists, such as anthropologists, economists, psychologists and sociologists. It aims to understand human behaviour, mental processes, and how people interact in society. In quantitative social research, researchers apply different statistical methods to data in order to do this. The objective of their research is to understand how and why people fare differently in life, and therefore how policies can be designed to help improve the lives of some.
Survey research involves collecting information from a sample of individuals through their answers to questions. Surveys are used in lots of parts of our society, for example by retail companies to understand shoppers’ preferences, in polls to reveal people’s voting intentions, and in studies such as BCS70. Surveys are carried out in different ways – including face-to-face or over the telephone with an interviewer, or on the internet by self-completion.
A birth cohort study follows a group of people that were born at a similar date or period of time – be it a day, month, year or decade, for instance. It follows these people throughout their lives, and collects information from them at particular ages. By following the same people over time, these studies are able to tell us how and why people change as they get older. BCS70 is a cohort study following people born in one week in 1970.
Our society is changing fast. Findings from birth cohort studies are used to chart and understand how society has changed over the years, and how life experiences are different for each generation. They help understand the impact of societal trends such as our ageing population and the growth in lone-parent and step-families, and changes such as growing employment insecurity.
Cohort studies help understand that change. Evidence from cohort studies have contributed to many policy decisions in diverse areas – such as increasing the duration of maternity leave, raising the school leaving age, updating breast feeding advice given to parents.